Experiencias de crianza de padres y madres de hijos/as con Síndrome de Down

Abstract

Introduction: Down Syndrome is and has been approached from different fields, both medical and social. The information about the perspective of thosewho are related to people with Down Syndrome is limited. Materials and methods: That's why, in this study, the methodology put into practice is qualitative of a descriptive type with a narrative design. These try to explore the experiences of each of the parents (mother and father). Through the realistic recording of their stories of life exposed by the participants, along with individual semi-structured interviews with a total of 11 questions. The research had the participation of 8 parents. Where 6 mothers and 2 fathers, were interviewed to analyze their stories about raising a child with Down Syndrome. To later analyze the information obtained within the study. In this research, it's possible to provide an improvement to the life stories that parents have had regarding their experiences in raising their children with Down Syndrome, using their perspective, allowing them to understand the feelings that parents share with their child with Down Syndrome. That makes it possible to discover a positive way of accompanying families with Down Syndrome. Results: Parenting experiences have been lumped together into the following categories: almost immediate denial and acceptance of their children's condition, greater attention to parenting, the importance of family support, access and inclusion to medical and educational centers (public and private). Conclusion: With the experiences of raising a child with Down Syndrome, the parents were able to transmit that the limitations are not restricted to the condition, but are frequently found in the medical, educational, social, and corresponding fields of inclusion, they do not show that it is fully accomplished.